Well, we finally made it home yesterday. Jamie can barely walk. Besides the big incision in her belly, she's got a hole in her spine. Kind of. Before the C-section they did a spinal tap to see if they can find what is going on with her. Because of all the different things they are searching for, they needed to take a lot of spinal fluid, which in tern means using a BIGGER needle. This big needle naturally caused a big hole, which makes some of her spinal fluid leak out of where it should be. Spinal fluid acts as a cushion for the brain, and without as much as you need, the brain sags.
what it means?
killer headache.
the fix?
deal with it.
it could take weeks to fully heal and replenish itself. yes WEEKS.
Anyway, all of the blood work that Dr. Gaito did came back negative. We are still leaning towards Lyme Disease (neurological lyme to be exact), But Dr. Gaito does not want to start any treatment until she can be more sure, therefore we must wait for all of the results of the spinal tap, which of course. . .
may take weeks.
*if you're not aware, lyme can very often show a false-negative because of the shoddy testing available at this time. it's often clinically diagnosed/treated, but we need to make sure all other diagnoses are tested to prevent misdiagnosing and mistreating.
there is currently a major controversy concerning lyme.
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